"All of the best heroes are ordinary people who everyday make themselves extraordinary." -Gerard Way
As we walked along the beach yesterday in Lincoln City, we were looking for one specific person (well, two) in the huge crowd of the Summer weekend hustle and bustle on the sand. For about ten minutes we kept looking for our newest member of the Capes and Crowns family, but couldn't seem to pick out who they were. Why? Because the person that we were looking for was just an ordinary kid, with some extraordinary things about him.
A few months ago, we received an application from the mother of a spunky little four year old boy who suffers from Epilepsy. This disease can be so scary, and to be honest I didn't know that much about it until they educated us a little bit yesterday. But instead of being frightened by his diagnosis, Malakai (aka Kai) did something that helped him have power instead of struggle. He created Epilepsy Man.
Epilepsy Man is a super hero that flies all around the world educating children, their families, and others about epilepsy and what exactly it is. He helps comfort those that need comfort when they need it most, and most importantly- he helps them be strong.
When we were told that Kai had created Epilepsy Man, we knew we had to do something awesome. Something out of the ordinary.
Luckily, we know some awesome people. Everfan is one of our newest partners and they have never ceased to amaze us. This? This was...phenomenal. Since none of us had ever had the honor of meeting Epilepsy Man himself, Kai sketched out and described exactly what his costume looks like and described him a bit to us. He seemed pretty amazing! We sent the photos over to Scott at Everfan and he got to work immediately.
Scott and his team worked night and day and created this entire costume (down to that AWESOME logo) to help Kai become this amazing person who gives him strength and helps him bring awareness about Epilepsy.
We spent the day running around on the beach and also at a hospital and the local ambulance depot (huge thanks to Pacific West Ambulance for answering the door when a bunch of random strangers knocked on the door on the weekend!). It could not have been more perfect, and I was so, so honored to meet Epilepsy Man.
We cannot say thank you enough to Everfan. They made Kai's dream a reality, and went above and beyond to make this happen.
Thank you also to Pacific West Ambulance for letting us take over an ambulance for a little bit and for being totally open for anything we had in our heads!
Be on the lookout in the skies for this handsome superhero! . And whenever you have a question about Epilepsy or are scared, just call for Epilepsy Man!
Costume Designed and Made by Everfan